Hi, thank you for visiting my website!
My name is Harvey; I am three years old and love life a lot! I was born on 18th January 2010, six weeks early.
Unfortunately my eagerness to join the world has left me suffering spastic diplegia cerebral palsy! This means I am unable to use my
legs properly and cannot walk currently. In the long term, without adequate intervention, my legs will eventually become deformed and I’m
likely to suffer quite a bit of pain!
There is an operation that can help me it’s called selective dorsal rhizotomy (SDR), which cuts the nerves at the bottom of my spine,
removing the spasticity in my legs permanently! This sounds great, but in reality it’s just the start.
I will need around two years of intense physiotherapy to fully exploit SDR, which may enable me to use my legs more normally – but
even then I’ll never be able to run or walk for long distances.
The operation is available on the NHS, but it’s a post code lottery whether I will get funding or not and I’ve been told that recent
applications in our area have been refused. Additionally, it often takes in excess of 18-months from referral to getting a decision on the operation on the NHS.
Therefore, my Mummy and Daddy intend to take me to St Louis, Missouri, USA, which is the world’s leading hospital for this operation, with over
2500 successful operations. However, as you can guess, this operation is expensive, costing around £50,000 to have this operation and the associated
physiotherapy. However, once this money is raised I can be operated upon very quickly.
I would like to pay my gratitude to all the people who are supporting me for the operation. Please check this link to see who are supporting me.
Harvey X X